Conference – COST Action ‘Citizen’s Health through public-private Initiatives: Public health, Market and Ethical perspectives’ (CHIP ME

COST Action IS1303 (CHIPME) Final Conference, September 4-6 2017 (Aula Maxima, Quadrangle, NUI Galway)

COST Action IS1303 (CHIPME) is a high capacity network formed to monitor, and offer guidance for, developments and emerging initiatives in genetic testing, research and healthcare throughout Europe. With members from 26 COST countries, this community of researchers and stakeholders brings together critical expertise in bioethics, ELSI analysis, genetic science, data sharing, information and communication technology, public-private collaborations and patient centred initiatives (PCI). During our final conference, we will be looking back at the work of the Action as well as looking into emerging developments that will be of interest to our field for the future. Our discussions will be dedicated to the reflection on the Action theme, the impact of recent innovations in the field of genomics and emerging challenges with regard to the following themes:

• Challenges of the expanded availability of genomic information
• Consent, return of results and new genomic technologies
• Public health and Private sector involvement
• Data-sharing and ICT developments
• Participatory and public engagement in genetics, science and research
• New ethical, legal and regulatory challenges: the case of gene editing

SPEAKERS

Our speakers include Professor Pascal Borry (KU Leuven), Dr Deborah Mascalzoni (Uppsala University), Ms Isabelle Budin Ljøsne (University of Oslo), Dr Danya Vears (KU Leuven), Dr Michele Loi (University of Zurich), Ms Heidi Beate Bentzen (University of Oslo), Dr Giovanni De Grandis (Norwegian University of Science and Technology), Professor Timo Minssen (University of Copenhagen) Dr Ana Nordberg (University of Copenhagen), Dr Heidi C. Howard (Uppsala University), Professor Klaus Hoeyer (University of Copenhagen), Professor Mikko Rask (University of Helsinki), Ms Brígida Riso (ISCTE – University Institute of Lisbon), Dr Lucia Galvagni (Bruno Kessler Foundation) & Dr Oliver Feeney (NUI Galway/Ghent University) and more to be confirmed.

OVERVIEW 

• MC meeting [CHIPME only]: Sept 4th @2pm
• Main Conference starts: Sept 4th @ 3pm
• Main Conference ends: Sept 5th @ 3pm
• Workshop on future research [CHIPME only]: Sept 5th @ 3.30pm
• CHIPME Work Meetings:
  • Sept 5th (5.00pm-6.30pm)
  • Sept 6th (9.30am – 12pm)

WHERE

The main venue will be the Aula Maxima, Quadrangle, NUI Galway.

The main conference is open to the public and all are welcome.

For more information, and to register for free, please go to here and check out our website.

For more information, please contact feeney.oli@gmail.com or heike.felzmann@nuigalway.ie